ab123
04-23-2014, 09:56 PM
Now I know half of you opened this when you shouldn't have and let me tell you none of you need to worry about what I have...
Anyways!
Since my POTS diagnosis I saw a neurologist yesterday, who believes I have a rare form of Gullian-Barre Syndrome, or as he called it (acute inflammatory demyelinating polyradiculoneuropathy, or panautonomic neuropathy) Thinking its basically an auto immune disease attacking my autonomic nervous system...which explains why I can't stand up without a crazy heart rate, and my digestion, blood pressure and dizziness issues. ANYWAYS!!! I had a lumbar puncture today, WORST EXPERIENCE IN MY LIFE. I reacted to the lidocaine while the needle was in my back drawing out my spinal fluid.. My whole body started to tremor, my heart rate went out of control..he ended up hitting a nerve... for 30 minutes after the procedure it was pure terror with that reaction.. which of course because of my anxiety history was looked at as anxiety. but I know different. so, I have another test tomorrow. a cortisol stimulation test. where they inject me with something and test my hormone levels. and I know this is very irrational because they are completely different drugs and what are the chances of another reaction... but i'm terrified beyond belief. Unfortunately I need some reassurance here and thought I would update my kind friends who have been so good to me. on a good note... I am still fighting and I will kick this things ass!!!!
Anyways!
Since my POTS diagnosis I saw a neurologist yesterday, who believes I have a rare form of Gullian-Barre Syndrome, or as he called it (acute inflammatory demyelinating polyradiculoneuropathy, or panautonomic neuropathy) Thinking its basically an auto immune disease attacking my autonomic nervous system...which explains why I can't stand up without a crazy heart rate, and my digestion, blood pressure and dizziness issues. ANYWAYS!!! I had a lumbar puncture today, WORST EXPERIENCE IN MY LIFE. I reacted to the lidocaine while the needle was in my back drawing out my spinal fluid.. My whole body started to tremor, my heart rate went out of control..he ended up hitting a nerve... for 30 minutes after the procedure it was pure terror with that reaction.. which of course because of my anxiety history was looked at as anxiety. but I know different. so, I have another test tomorrow. a cortisol stimulation test. where they inject me with something and test my hormone levels. and I know this is very irrational because they are completely different drugs and what are the chances of another reaction... but i'm terrified beyond belief. Unfortunately I need some reassurance here and thought I would update my kind friends who have been so good to me. on a good note... I am still fighting and I will kick this things ass!!!!