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  1. #141
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    Living The Lie - Rehashed Version NDIS - No Petrol Left

    I've talked more than a few times now about the bureaucracy behind the scenes and how that language and deception drives me to insanity. Because I have inadvertently shared this website with someone helping me who actually asked if these so called telling's of mine were public, I think I will put another spin on how it is that I am so close to giving that all up and perhaps share why it is that I feel so trapped:

    Whilst my idealizations are not as intense or intended as they once were with the petrol can episode where I confronted the manager of an employment agency which resulted in police intervention and my subsequent Rubber Stamped Response AKA Disability Pension. Fact was when I did attempt to go back looking for work I was told I was no longer a priority. Yet another conflict as I was led to beleive that I would find more schemes that could assist more with finding employment if I as on DSP. In the end I accepted the clinical technician/therapist's (that was used with said stamp) take in allowing the pension to be used as a form alleviating pressures that was sending my over the edge. Given the extreme amount of reoccurring conflicts on ongoing inconsistency with what I eventually termed as 'Living the Lie' I decided to no longer participate as doing so was clearly killing me. My brother would be dead 2 years on from this point having been misunderstood and enduring said system not unlike me.

    I was actually a disability support worker a few years before the petrol can episode and it was then with my first ever brand new fancy car that I made the trip to visit him. The housing commission estate he lived in looked more like a prison yard lined with small units and when viewed from the open grass area, looked more like cell blocks with broken shattered bottles and broken windows. At night the noise was quite disturbing with all manner of disputes constantly being amplified. It was clear to see why people were using drugs to dull the suffering. My brother literally had one of those coats that when opened up had a pharmacy of pills to choose from not to mention the home grown and synthesized stuff. Long story short, as the story goes - my brother gravely says "I will be dead long before you." It broke me when he said it because the way he said it and what I had seen all the years later after decades of hard knocks I sensed it in my bones to be true. I was not in tune with what I was seeing in my line of work and as much as disheartened as he. Although we had different fathers and looked completely differently we were known to have an identical pitch and pace in the earnest way we both spoke and expressed.

    I lost my job not long after returning and the same conflicts I was dealing with in the employment agency was as rife in the disability sector I was working in. When I expressed as much on paper I was quickly sacked without the support of my coordinator. He was held at bay. My wife and I had that company overhauled via a heavy campaign of complaints (re DSQ) where my coordinator left that company and went on to pioneer and direct his own disability establishment where he now has me formally under his wing. I'll get to that in a minute as just went off track.

    Something broke in me after that. I was a good disability support worker and whilst I found the community access very challenging I did enjoy the personal care with the help of said coordinator. One family would often ask after me as they found my connection with their son genuine. Another client who meant just as much to me would also ask after me. I think this is what my coordinator saw in me too and why we are still good friends to this day. At any rate - they way I was myself dismissed in the end led my to my sudden lack of desire to ever participate in society ever again. It was a slow decline until all the noises got louder, the lights got brighter and the pain of it all in my head was just to much. Employment officers or whatever you want to call them just palmed me off with all manner of threats. All my efforts to bounce back like I had re self help and exercise mattered little as I struggled more and more to follow directions and adjust to the changing dynamics of employment courses and new market for certifications. My learning difficulties became more apparent and I my trust constantly broken every time I made the effort to open up. Job interviews developed into full blown panic attacks that lasted days before the event and then the constant humiliation I suffered with XY&Z employers just sent me around the bend. Not only friends and family would tell me to lie on my fortnightly forms required in order to pay rent of food, but also the employment case workers would also tell me to lie on those forms. Just write down something from the yellow pages. Like just list several places of employment that you never actually went too. For me this was not only a big deal because I found it hard to lie from a morale perspective but I did not have the capacity to remember how to lie and all the associated information. In fact many people did not like this about me and in fact never trusted me because of it. At any rate - the conflict in seeing my usual jobs become less and less available as I was really only any good for farm labor which had changed so much over the years and me then living in the suburbs with kids ... Well ... Living the Lie made me go suicidal and hence the petrol can episode. I never hurt anyone ... not intentionally. I know I was not much good to my family though with the ways things were going for me. Living the Lie on all fronts. It happened in the disability sector and continue when unemployed.

    I don't think I adequately touched on the deception and abuse many long term unemployed and disadvantaged people go through in that sector of the community as treated by others who seem themselves above simply from having something over another within the human resource pool as dictated to by whatever political party. No matter what party gets in they just rename the schemes yet the same rigid uncaring ruthless dealings take place. The same reoccurring conflicts on ongoing inconsistencies. As I started loosing it more and more I would be put on this or that stream that would have me seen as more hopeless and treated as such accordingly. One variable in the changing of governments, you would see those case workers you once connected well with no longer available. Apparently told to me that they had moved onto greener pastures. This I have heard many times over the years and it emulates well the pent up negative mindsets of those public servants who've become deeply entrenched from one year to the next. Until one day someone like me turns up with a petrol can and lighter. That is one way to shine some light on their pessimistic demeanor. Of course I can't say for sure that the young girl who was unfortunate to of crossed my path on that day was like that at all. I myself had not bitter intentions. I was in a puddle of tears as I pulled the petrol can from my bag as I began to plead my case that I was no longer able to play their game. I assured her I was not going to set light to the can. I pulled out the rope just to explain what I envisaged myself doing in dreams building up to said event. I brought everything with me except the ladder. I was fumbling, trembling, crying whilst trying to assert my story without being aggressive. For her age she impressed me with her de-escalation skills more so from her seemingly genuine tone of sympathy. End of story I was not arrested but instead rubber stamped and like I said, my brothers revelation came true 2 years later when he was found dead on his living room floor falling victim to his well endowed coat which was his assist in dealing with same BS I was enduring.

    He too was pensioned off just months before his end and moved into a cleaner disability block with what looked to offer scope in the easing of pressure. His diagnoses to warrant a pension was drug induced schizophrenia with a I am sure some spiel about PTSD and prejudicial childhood. Text book stuff really. Anyways - So it is that I really pay no attention when I hear people reasoning the system this and the system that. I know people mean well when they tell me that. It's just that such reasoning falls short once you've been rubber stamped as permanently affected yet weigh up the needles cost that only adds to the byproduct and from there is just goes around in circles. Moreover, just like the BS schemes previously put in place re employment, the new would be disability services sector now slowly assimilating the disability pension is just putting people like me back into the warranting and proving with all that reoccurring conflicts on ongoing inconsistency.

    As much as I want nothing to do with society and humanity due to said system as often explained and experienced be me and my dearly departed brother, I do appreciate those in the system trying to make a difference. I've been very both fortunate and worked hard to have the people in my life I do now re my supports. However, the indignity I recently endured via the review meeting with said bias as outlined in my complaints and the way in which those who support me have been ignored, the reports, assessments and so on and on ... I now sing the same tune I did when I pulled that petrol can out, although much more the wiser "I just don't have anything left in me to keep playing this game" The process is killing me over and over!


    Before The Carrot On a Stick / Basic DSP:




    NDIS - Insurance Scheme


    ****, you know the journey I've had to take and I got to tell ya, the only petrol I have left is that which I remember that led to the rubber stamp.
    Last edited by Ponder; 06-18-2021 at 08:06 AM.

  2. #142
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    More Context to Last Post - Shared Email

    Dear **********,


    I have decided to link you up despite blurring the lines. I have no petrol left so to speak. If you get time, have a read. You did ask about me today if I had a public link to said thoughts and given I have lost the will and hope I see no problem with you now having a link. I made a special post with this in mind. I think it depicts well my take on how things have unfolded for me re our Journey. It goes deeper than that but the truth is I used to relax more before NDIS and only migrated out of concern because of how this new system is assimilating existing mental health services.


    I think I just nailed it with where it's all going and how and why I even bothered to sign up in the first place. I'll hold the course for now but please be aware I have no more stomach for the amount of reoccurring conflicts on ongoing inconsistencies. I hope this better explains why I struggle as I now do after 'that' review. I am fully transparent in a system that has only ever proved itself to be not. My wife is not happy about my wish to disengage and currently I am 'Not' formally doing so - but you seemed to want to know where I stood from a public perspective. Now you know ... just follow this link:


    You're one of the workers I said I have full respect for. I wish you the best of luck in seeking answers. To keep things transparent I'm also going to log this publicly as well without the names of course.. I've never done well at playing games.


    Regretfully
    Ponder/**** *********

  3. #143
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    Apologies of this is all feeling a bit too much 'heart on sleeve syndrome.' In terms of being RAW I would say I have come a long way. That said, I won't put that positive development down to the current Disability Support Reforms. This space in here has contributed way more than that. Just popped in to say I'm going to take a couple of days off and see what I can do in terms of a more objective review. I intend to make a decision regarding my future after hearing back on some of the conflicts I'll better convey in my next post.


  4. #144
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    Creating One's Own Space.

    Bare with me as I am not 100%. Like my best posts are generally in the morning and whilst that is not too far away, I have been up since 1:30am creating a new online space with it now being 3:41 as I glance the lower right hand corner of my PC's display. Here is what I have come up with so far. Creating a New Forum designed for Online Journaling. It's just off the top of my head and only an hour and half's work. I am really need this and I will now explain why:

    About the Adds:
    Before I do my usual longwinded explanation - for those interested although this post in not about marketing - I do apologize for the banner adds or any adds that may or may not pop up. This forum was created using open source software/freeware service and thus for banner adds will be present. I'm just not sure about in thread adds. I very much dislike those. Hopefully only banner adds. If I find this new space gells well, I do intent to sell some unused devices to fund getting rid of those adds. More on that latter.

    Why I Keep yearning to find my own Space:
    Defining this is no easy task. It's no secret there are those of us that find this forum somewhat unique, yet there is an empty hole in it for me. I recently expressed on this matter using the term 'echo' and how it was that feeling was making me feel isolated. Well I think I can better explain in saying that it's not so much a case that I require a forum that is populated, but more so a forum with like minded people. I avoided using the word 'active' as that implies I require everyone post. I do not. Many people just come to read and that's OK. In fact that alone does give a sense of connection on both sides. If people are consistently reading then one would think they are connecting just as I connect with the feeling of being read as much as I do with myself as I write to myself. There is more depth to that but for now the connection I am tending for in a space of what I incorrectly term as 'My Own Space' is not so much about the numbers at all but everything to do with finding connection.

    Finding one's own space in a public place goes against the grain as the sense of connection that comes from being read by others whilst writing to one's self, over time, reveals to one that there is not such thing as one space. The validation of connection is a healthy thing. Especially when we feel so isolating in a shrinking world. This contrast is a perfect example of how the number game no longer works. So many of us are being led astray in this world of self. Here ... let me try this. How can one reflect from an objective position on one's self when the nature of the forum is based on the number of counts, likes, upvotes, status, moderations and so on. In some places it's all about the thumbs down or down votes. The programing in general I find really toxic and I want nothing to do with it. Most forums I see are devoid of a journaling section. It's discouraged because it does not promote people to get out and banter where it's all about the numbers. Quick one liners with images with words that take up more space than the image. For me it's all back to front. Perhaps one of my labels being autistic is to blame, but whilst those traits I can accept are likely there, that is not really the reason I am no longer able to function with said dysfunction. The world I see it pretty much full of deception and kidding itself as well as others.

    In this I expect to only find on online space with scarcely anyone in it if it where to be in line with what I feel that works. This is how entrenched I see the world with dysfunction. I have allowed myself to fall victim to it for far too long. This is also why I am very much misunderstood and seen as someone who does not fit - AKA - misfit. Instead of letting the labels dictate I am now going to change it like I once did. To be sure life is episodic - the thing is ... that is perfectly normal! Don't let anyone tell you it isn't.
    ________________________

    OK - That's the best reason I can give re looking for a new space. The echoes that make me feel cold are more about taking up space in a form that's best suited for the industrialized vulnerable. I've said I am going to leave many times and even the name of the Journal shows just how hard that can be. Such is a testament to the core and strength of a global problem and given the decision I am about to make re giving up my disability supports, so to I am just as committed to moving on. This new space I am limited in re post counts and the usual conditioned programming/algorithm, however I do still have options to keep it a place of free speech compared to 99% of mental health forums. In fact being in one that does not focus on the industrialized nature of labels is a very beneficial thing.

    I have decided to give up my disability supports and pull out of the automated industrialized reforms.
    This is a huge decision, but one I know is right for me. This in now way undermines my past, current capacity and or those so called certifications. The game will continue as long as I am in this industrialized prison. Boy oh boy, have a got a story about how that game is played. The things that have been said to me to keep me in it. "You'll never get back on the scheme!" (Oppressive - although well meant I am sure) "How will you cope?" (Devalues) "Then you never needed it!" (Demeans the potential and benefits gained minus the triggers and incompetent administering. An isolating comment that passed the buck) it goes on from there and I will cover them as I Journal. So far I have only been met with 100% fear based comments that only do more to disempower. The reforms are very disabling for those with mental illness and they will never admit it. They will not listen as they are constrained by those the forces that govern. Something that is bigger than all of them and not set to change anytime soon. If anything the reforms have butchered what humanitarian values where left in the community thus mechanizing what ounce of spirit was left. The last call to centralization but again for another post. Truly, those invested with a means of living can never have this perspective of see. Those that do, and are trying their best to stay the course either burn out or end up denying in ways not so obvious. Me ... I really need to regain my health as that system was and is literally draining the life out of me.

    I have never been in such a low for so long. My episodes have seen me recover. I accept my cycles ... that reform scheme they have now in place does what anti-depressants and anti psychotics do to me. I stress 'for me' as I know those alternatives can work for others, but my make up is ultrasensitive to those things. What do they do to me? The stretch out those highs and lows into one long thin line where I feel nothing! They also make me completely dependent and flat at the same time. This is what the NDIS and it's handling of mental illness has done for me. It was the last facet of disability to come on board and those assessing have no idea about how to treat such individuals. In the new way ... the brave new world and I won't be party to it. I would much rather the soup kitchens which I guess is the next form of centralization. I'm done with it. I am going back to what I feel works ... to feel again as I once did.

    For now I need to settle a little. Holly shit! It's heading toward 5am. Chuckles out loud as I have a support person coming over in less time than I have been up since 1:30am. There is so much I want to say but my brain is somewhat fading with having put together what I have.

    cont ...

  5. #145
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    cont ...

    My Exit Strategy:
    Working on it ... but I admit I am feeling good about it. It's been implied my pension may be at risk. Again more fear! My reason for leavening will be spelled out and I will explain much better than the above how it is how I was handled. The conflict is to show them the certifications they spent thousands on and then how they then ignore the results. I have way too many certificates for them to threaten my pension. I am only giving up the carrot on the stick not the bread and butter which I know they have to keep handing out ... less they want full blown chaos which I know they don't! All I am doing is learning to live in less! and that my friends is where true freedom is. I say NO to their carrots and the strings with the demeaning way in which they treat people as they see as less ... last! The last to be adopted and how neglected they treat those they see less. Yep that was better said.


    Being homeless was not so much the fear I had recently re all the stress. I would endure that all over again if it meant I have my wife and grandson with me. That kind of unity is something the the system does not want. Instead it is all about devaluing people and treating them as separate individuals with labels that imply the fault lays with them. NO MORE! I'll find a way to keep us together as long as it is meant and do it without being assimilated and dehumanized as is happening to so many of us. I am changing my tune about people. I am starting to see how the incited fear drives us to hating eachtoher and that too is not longer sitting well with me. I will not hate the system, I will unlearn that too as I get ready to truly disconnect. Like I say - unplugging is really where it is at. To disconnect yet still have a connection ... to be in prison but not a prisoner and so on and on.


    5:09am I only awake so early because my wife texted me. I really need to turn off that damn phone when I go to sleep. My wife is having a hard time because she has to front up to that same toxic system I just spoke about in a few days to fight to keep our grandson out of harms way.


    For those few reading, I wish you well. We all have the capacity for peace. That we can only find for ourselves. Don't let the system devalue you into thinking you need them. Connection is important but sometimes you got to disconnect when you know that that system is killing you. That is my plan at least.


    Adios ... until next post.

  6. #146
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    Hello Ponder..

    I'll try to think about forums another time and thank you for your input over at NMP. as well, so we'll see, I guess.

    Just aside from forums,

    I'm worried about you. Are you sure this is the right decision? Are you seeking all advice? I know seeking advice from the very institution you are caught up in this vicious cycle will get you jaded advice. I don't want you to become homeless. I'm glad you have strong support of wife and grandson, but being homeless could be dangerous. I don't want you to lose your pension.
    Quote Originally Posted by Ponder View Post
    Working on it ... but I admit I am feeling good about it. It's been implied my pension may be at risk. Again more fear! My reason for leavening will be spelled out and I will explain much better than the above how it is how I was handled. The conflict is to show them the certifications they spent thousands on and then how they then ignore the results. I have way too many certificates for them to threaten my pension. I am only giving up the carrot on the stick not the bread and butter which I know they have to keep handing out ... less they want full blown chaos which I know they don't! All I am doing is learning to live in less! and that my friends is where true freedom is. I say NO to their carrots and the strings with the demeaning way in which they treat people as they see as less ... last!
    But can you say no to the carrots and still receive the bread and butter?

    You wrote:
    "I have way too many certificates for them to threaten my pension'

    See.. I can relate to this because I do NOT have proper certifications in place and have to stay ' in the system' because I would not survive homeless on the streets. I don't think I'd last a day. I at least need a roof over my head and a bed to sleep without infested beg bugs and diseases from shelters.

    Again, I'm sorry for all the 20 questions and I do trust you and know instinct and intuition won't lead you astray, but I just want to know you it isn't just frustration getting the best of you.

    I'm ok and managing day-by-day but I'm refraining from making any decisions seeing I'm not in a proper state of mind. Hard to explain.

    Sorry again, just care about you is all. I'm here for you regardless and want only for safety. The unity will always be there with wife and grandson - nobody can take that away.

    Your friend..

    Salvatore

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    No - I do not know what I am doing. : (

    Hi Sal. ... I am sad for both of us. No. I do not know what I am doing really. I just got up and the ringing in my ears has never been as loud as it's been. It's quite a high pitch and feels like it's penetrating deep into my brain. The 5mg of this medication does nothing for me so I took 15mg and it started to work and I went to sleep OK. I have woken up without a foggy head, but the ringing in me ears is like I say. Having said that I am used to it. I do have tinnitus and in fact It was brought on when I first started taking antidepressants. Now I am sure I was gong to get it at any rate so not meaning to bash meds. I am at a point in my life where I am needing them despite my tendency to have all the side effects.

    I'm loosing track. I really don't know what I am doing and the only yes I can say for certain is that your are right for me to be concerned. I have a very reactionary brain that suits my ASD quite well and my PTSD classified as life long aka permanent or whatever is also adding to the ringing in my ears. My anxiety is off the charts with everything going on.

    Huge breath! and Sigh ... I want to skirt a little on that sensitive topic that you mentioned the other day without focusing too much on it but only to acknowledge the deep despair and pain by saying I have never before had to constantly quell the Ideations of it all wanting to end at the rate I have over these last few months and in that I can also be sure this ringing in my ears is as much from the residual of having to deal with a fracturing soul. I say 'ing' as the process just not seem to end and that process is the one being in question when talking about said system that is better defined as the machine. Our humanity is at risk whilst people simply do not see.

    GGGGrrrrrrrrrrrrrrrrrr ... Perhaps I should allow myself to be angered. Hmmmmmmm I think more about that ... for now I need to make a cup of black tea with 2 sugras and milk to bring me back down to earth then I am going to come back in write another post in here ... as I feel I really need to be more open about what I have come to this point on giving it all up - YET - I don't know how, but like another dear soul (whom I also miss - we had falling out my fault) who I used to talk to in here ... you know me VERY WELL. Yes I am climbing the walls over this huge decision. Yet in that, it kind of speaks volumes to the grasp we are all under when it comes to said system and that process of which I talk about.

    When you said you did not have the certifications, I immediately thought of how the system is designed like an insurance lawyer embedded in the human services who's job is to make sure people are not entitled to political promises, policies and acts. Here in Australia and other parts of the world we have been educated somewhat as to the sheer brutality of the American system. To me it is the pinnacle of all that is wrong it the world today. I mean no offence by saying that. As a 'so-called' Australian, we are one of Americans closest Allies. which I do not subscribe to in the least and would be OH SO HAPPY to be murdered as a TRAITOR! To see our country adopting American ideals over the decades has seen us turn into nothing more than a replica of the American system but sewn up in a different way. Most notably welfare reforms, yet in some sense the oppression that comes with these 'benefits' leaves the majority as entrapped and over lorded as those in China. If fact, whilst not happy about any country that seeks to rule over as they do, at least China is transparent which from my position is really saying something. Transparency goes a long way to stemming the insanity. I would much rather be feeling lorded over than insane! In the west we are lorded over and insane! It's just that most people are sleeping by way of ... well I won't go into how people are deluded and or kept asleep. I think most of us know how that goes which only leads to more insane thoughts for those who slowly come into the know.

    I go get that cuppa, come back and write up something I need to that reflects the internal review that is supposed to be going ahead with my case.
    Last edited by Ponder; 06-21-2021 at 01:16 PM.

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    Post Prepping my Approach to Internal Review: Just flexing before I have to go rigid.

    Before we get into 'OK - here's the deal ... Internal Review' and not knowing whether to roll my eyes on that:

    Remember the guy I said I used to work under when I myself was a disability support worker. My long-time friend that went out on his own and created his own disability business. He has given some great advice that is also been put forward to my coordinator who is also doing all she can for me by way of internal review. I just wanted to answer another one of your questions to acknowdele all that you wrote; every word. I am all about fostering relations Sal as I know this life is not just about me. I am very grateful for this well timed post of yours. I can see very clearly what you wrote "I know seeking advice from the very institution you are caught up in this vicious cycle will get you jaded advice." I'm not saying my friend who went out on his own to create a very successful disability program, is not prone to being assimilated by corrupt insurance practices. Everybody in the system is prone to that - even us as consumers. However, I do know by way of close continuing relations that I can trust his advice.

    How The Disability Pension Woks in Australia (Just my take, but you know my experience)
    As for the disability pension. At this stage as far as I know, the disability reforms (NDIS) in question purely relate to supports separate from the basic DSP (Disability Support Pension) The DSP is very hard to get. They now have their own 'doctors' and there are very much insurance orientated. Basically these
    compartmentalized professionals are constrained within 'current' government bias and agendas as outline by whatever one can imagine as the latest trend. The real reports are basically watered down on a second level via these insurance agents. The first process of legit documents/reports is watered down via 'GPs' / General Practitioners. Most of those unjaded and doing what they can in the system all admit having a (GP) over see reports by way for filling out the DSP claims is problematic at best. First of foremost those doctor's expertise is limited to Band-Aid measures. No offense, as yet they play a vital role in society. Whatever. The fact is that using GPs to oversee DSP claims is seen very much as a weak link in the chain OR as a stop gap measure (aka buffer) ... Take your pick on either of those perceptions. The first point of call for anyone looking to put in a claim for DSP is to understand this fact very well.

    This is why it is so important to have a good
    rapport with your GP. It's exactly why my therapist is coming to an appointment with me in a few weeks. I feel she needs to understand me better as too the legitimate qualifications of the person supporting me. This plays into the above weak link re GPs. I know what I am talking about despite being classified as byproducts. In this light I have had to educate myself just as I did on the streets. That why I am still alive today whilst 'many' of my close friends, brother and close acquaintances of the past are not. The process is a continual grind to say the least regardless of the romantic claims I have continually heard in group therapy from those conditioned ... saying things like "Oh what a lucky country we live in ..." Thus begins the process of comparisons with third world countries and the front line new paper articles and popular science then follows. FFS! Forgive me as I roll around on my floor laughing insanely. Forgive my candidness as I am sure different perspectives will devalue my previous points in the eyes of those so conditioned; still asleep. I mean not to be harsh in judgments of my fellow man but simply connect with others like myself who have been round and round the merry-go-round.

    Hell - there are even disability lawyers who specialize in advocating for vulnerable individuals who are caught up in this bureaucratic circus. This facet comes and goes depending who is in government. Sigh. You really nailed it with that comment Sal → "I know seeking advice from the very institution you are caught up in this vicious cycle will get you jaded advice." I just takes me a couple of paragraphs to explain how some of the works. I know so well what you mean and it really just adds to the insanity. But thank you so much for the grounding.

    Dysfunction:
    There is so much more to 'How it Works ..." That much needed quality
    rapport is needed for all the people involved and sadly many of us just don't get to see the same individual long enough, but still - these things can be worked on the more we slip through the gaps. Sometimes not ... just trying to make another point. When you find yourself becoming more dysfunctional one would do well to learn what dysfunction is and what that means and how that impacts you and your surrounding. One you learn more about said dysfunction and how that relates to you, then you can better decide what certification you will to adopt ... more over what kind of professional to seek out. In the early stages it is usually a low grade consoler who none the less like GPs play a vital role in society. Depending on the circumstances in your journey such as historical events, environmental conditioning leading to whatever symptoms and the gauging of those as you best understand (seek to understand) these knowing's are what one needs to learn rather than sitting there allowing those employed to simple tell you how it is. Any of the decent ones doing a proper job should be listening after asking whatever questions and not telling. That said, whilst it's a two-way street the problematic issue of insurance agents (different groups of doctors and lawyers) and the red tape is as much another learning curve and one that is not readily taught. That is something that only comes from lived experience and those of us willing to talk. Sorry I lost track again and yet to right more specific re my Internal Review. Everything I said matters though ... it taints the perceptions and the way I should choose to write pending who I wish to talk to so that my words are heard. So it is I will break this train of though ... take another break and think more on said approach when looking to direct my appeal re my current case.
    _____________________

    hmmmmmmmmmmm





  9. #149
    Senior Member
    Join Date
    Oct 2013
    Location
    Australia
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    6,877

    NDIS Inconsistencies /Impact/ Broken Momentum-Trust/ Inner Workings of Client Support

    NDIS Assessment Failings
    1: Disregard for Clients Diagnoses as legitimately Reported by Accredited Possessional.
    Coordinator has highlighted via observations that client's upscaled diagnosis was disregarded which has now been brought to your attention. Failing to recognize upscaled diagnosis has meant that all listed recommendations provided by said professional have also been disregarded. This entails the transparency in clients existing supports prior and during the review process as well as outright dismissal in recognition of clients 'increase' in supports that correlate to upscaled diagnosis as outlined in the findings of the NIDI Report to which thousands were spent on said assessments.

    Why did this happen? The phycologist creditability was quickly dismissed.
    Assessors failed to connect previous reports. The first report for client which was used to warrant a disability pension in 2012 was done by a Clinical Psychologist report. This relationship was fostered over 4 years until a second report was done up by a Registered Psychologist. That report was based on the previous clinical report (with similar findings) with the exception of Autism being investigated yet not formally diagnosed. That report was used in conjunction with previous clinical to first accessing the NDIS. NDIS was reject on the basis that the client did not have a permanent disability. An appeal was set in process based that client was already on a DSP (Disability Pension) which stated on government website that clients must has a permanent disability in order to be warranted DSP. Centerlink insurance agents yielded to a disability advocate (Lawyer) and the permanency of employment incapacity was established. NDIS required a different language be used despite the permanent nature of incapacitation already having been warranted by the same government via DSP. A new document via the clients current 'registered' phycologist was drawn up to change terms 'life long/unremitting' to 'PERMANAT' in the introduction, body and ending of that document. Client then was accepted onto the NDIS program.

    During Review process several reports were drawn up all correlating with one another. A psychiatrist report was utilized at some point previously that addressed the Registered Psychologist's queries and referral. Client was diagnosed with Autism Mild, Ongoing Chronic Complex PTSD, Social Phobia/Anxiety Disorder with Adult ADHD to be investigated. I was later referred of a Registered Psychologist where at great cost to the NDIS I spent many hours over 6 months (much more time than with psychiatrist) with an addition of several intense hours dedicated to specialized assessments where Registered Psychologist had followed the previous pattern of recommendations and his legal qualified certification to legally 'upscale' the clients Autism Diagnosis and completed the ADHD having more than adequately outlined the 'overlapping' of all client conditions (very important factor to the extremes of individual clients and relative impact) before coming up with his own NDIS report and thus recommendation which also like his findings were dismissed. Not to be overlooked is the handling of the review that resulted in client relapsing into a mental breakdown. See Below:


    Review Process / Client Poorly Treated resulting in Mental Break Down
    So it is in the same manner that the client after being reviewed ended up self harming during interview and having extreme PTSD episodes that lasted several days. The client ended up back on medication and has since regressed with current NDIS reduction in funding and supports. Please refer to client online complaint form re this aspect of his review meeting. NDIS ***** ******

    Client Inclusion/Proactive Tendencies +
    The client is regarded by all supports as extremely proactive and inclusive in his interactions. This has been the case before and during NDIS. With regards to the NDIS Scheme this proactiveness was observed towards the end of his most recent plan. Client was held back in the earlier part of his plan due to Covid19 and life impacting events. EDIT + add on from hereRoad Rage Incident resulting in reintegration of Psychologist, (after breakdown of previous one who refused to work with NDIS) - Major Should Reconstruction/Operation - Ombudsman complaint advocated by PWD advocate after being mistreated at local office (highlights client vulnerability in the community and why he need support - was unsupported) come back and list others ... ZZZzzz ← Needs to be added to bellow two titles down re the 'Gap' in Accounting for next 3 years! (re underutilization)

    Before NDIS assimilated the mental health landscape re community supports, one achievement of the client that reflects his proactiveness was being selected as an advocate in his region to represent his local peers at the annual Flourish Australia Mental Health Seminar held in the capital city of Sydney. Flourish Australia is a well know and established Mental Health Service that was servicing Australia well before NDSI. The client was also unitizing a number of other services such as 8 years of consistent psychotherapy by way of varioius phycologists, both registered and clinical + a couple of psychiatrists. He spent '4 years' in a stepping stone project that is only meant to last 12 to 18months: 'PHaMs' AKA 'Personal Helpers and Mentors' PHaMs was a project run by a disability employment agency although employment was not a goal of that particular program the client was on. During this time the client came off antidepressants and antipsychotics and lost (edit) not 26kg but 36kg of weight where in the end he Joined Flourish Australia going on to advocate for his peers. Before NDIS. The thing to note in all of this, is that although the client was on a DSP, there was no requirement or obligation for the client to participate at any level in any of these programs. He sort these community programs out on his own effort as he found the will, wishing to better himself. Before NDIS it was through these community programs like PHaMs and many others like them that the client was utilizing before they were absorbed into the NDIS - Including Flourish Australia - The client was known to get good results when supported because of his willingness to be inclusive. In fact it is why he chose to migrate to NDIS as all the supports he we once utilizing had slowly started closing their doors to make way for the New National Disability Reforms: NDIS.

    Sudden Change & Impact. Withdrawing Supports:
    Lead on from here with how the same symptomatic traits that make client excel BUT also derail in sudden changes, no different than taking way a console control from my 6 year old grandson mid way of killing a boss. More so how counter productive such is with supports and that this somehow reflects that lack of understanding by those assessing ... yadda yadda. If you want to help then learn how to do it right ... sigh. Read the god damn fucking reports and stop snowballing like an insurance agent ... time for a break ... just a couple more notes:
    Disregard for GAP in supports 2020/2021 COVID 19 Impact and Major Life Events:
    relates to simple accounting of funding over a 3 year period for next plan and how that has left client short when taking seriously the NDIS reports in conjunction with Support Worker Notes that have also been disregarded in terms of client impact and level of needed support whilst out in the community and also gives reason to notes. This also highlights required TIER LVL support again also ignored.

    Use reports to highlight the Needs and contrast the difference when unsupported - highlight needs in correlating to the assessments relaying the dysfunction when under stress - outside activities and so on and on. Get more specific with past examples such as stay with parents, public transport (had to be supported as was unable to follow directions plain and bus terminals) again - read the support notes re community access - benefits Vs not - (VS this continual effort to keep proving one's point???? In this regard bumbling along like a confused fool from one town to the next might not be as painful as all this BS) Here have some help ... No - Yes - NO - yes - NO! Which is it? FUCK OFF THEN ... LEAVE ME ALONE. This is keeping it honest because my traits will be with my regardless of what I choose - yet I wonder how much more fucked up I am when being treated like so - Yes? NO! Did you say carrot? Yes ... yes ... NO!

    Fractured Notes - Ongoing Concerns - Impact of Reduced Supports/Funding
    Disregarded for support worker notes - team building/rapport/working towards/NDIS Outcomes Based dismissing the former that being the ingredients to success - more conflicts ... time for a break: BRB Running out of characters - lead off with last bolded text in relation to client momentum, broken trust - contrast with recent episode of being supported on recent family trip Vs not being supported on recent family trip! Huge contrast that one. Estimate the Gap
    Last edited by Ponder; 06-21-2021 at 07:41 PM.

  10. #150
    Senior Member
    Join Date
    Oct 2013
    Location
    Australia
    Posts
    6,877
    OK - Can't do any more at this point. Wife and daughter ready for the big trip to the Federal courts and fight for my grandson. I will be appearing by phone. I'll also be very busy looking after my grandson. It's outside dealing with those fucking puppets that does my head in. How the fuck I put that into focus anymore and have it on someone's desk who has the gumption to pick up the case and address it accordingly? Can you see why I am ready to give up? None the less I will try Sal. I'll come back go over most of that and add a few things and see if I can make it more palatable in their BS language.

    I'm yet to point out what my supports are, why and so forth ... as whilst I can say it's all in the reports I am sure many reading are wondering that they are. The nature of onscreen articulation then ability to function in the industrialized community is very complex and debilitating. Like going from how I be now to mute. Hard to explain but I will assume you know this point well enough?

    Alan Watts has some good points on the playing of games - BUT - I am sick of playing along. Sigh. I'll work it out.

    Thanks Sal! It's also a good summery of much of what I have posted of the years.
    Last edited by Ponder; 06-21-2021 at 07:43 PM.

 

 

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