Baby Blues

[Silmarwen18]

About 3 weeks before our wedding my husband was diagnosed with Leukaemia. After seeing hospital doctors and going to appointments we were told he'd be fine once on his medication to have a normal long life and still be able to have a family. We were so thrilled that after such a grim diagnosis he'd be ok. He is perfectly healthy, has regular check ups and is otherwise well. However, the 'having a family' part wasn't entirely true. He started the medicine a week after diagnosis and we were told there was no time to bank sperm (duh) but we'd be fine so no stress. However its now been brought up that there is no research proving conception whist on the medicine is safe (neither has it been proven dangerous F.Y.I) and they are refusing to let us have a baby. I have never been so depressed about anything like this before but its wrecking me. I feel lied to, betrayed... like I know we had to get him on the meds to save his life but to blow off banking sperm like its nothing and to cost us the one thing we've dreamed of all our lives is just horrific. I've been through enough in this regard already... I've had medically diagnosed heavy and excruciating labour like periods ever since they started at 11. It turns out my uterus is backwards so it will never stop until menopause. They've tried everything except corrective surgery to fix it. Now I feel like its all for nothing...that I'm going through hell every month and its sole purpose is no longer valid. They say the only way to conceive is to wait for his cancer to be non-existent and then risk his life again by taking him off the medication...

This is absolute torture.... and the thought that this all could have been avoided if we hadn't been blown off at the start REALLY pisses me off. And I should mention HES COMPLETELY FINE. Less then %1 cancer and almost stable. They just expect it to be gone for TWO YEARS before he can come off.

Given the above mentioned lack of research do you think we should just go for it? Or should I admit baby making defeat?

Please help... im sick of dying inside every month...

[Anne1221]

Can you see another specialist to discuss with them?

[Silmarwen18]

Hmm... we'd have to do some research but at the moment he goes to hospital-organized appointments with a specified doctor and doesn't really have a say in the matter. Thanks for the advice though...

[Nowuccas]

Hey Silmarwen18,

One option is to just disregard medical advice and try for a baby, and have the foetus genetically tested via amniocentesis to see if there would be a problem.

Check out http://www.vitamindwiki.com/Cancer+-+Leukemia such as:

Chemo reduced leukemia patients vitamin D levels – Jan 2013,

Lymphoma, leukemia etc, survival poor if low vitamin D – meta-analysis March 2015,

Leukemia should be helped by vitamin D – Review July 2012,

Less Leukemia where there is more UVB (Vitamin D, 172 countries) – Dec 2015.

The Australian Cancer Council has finally begun recommending 30 mns of sensible sun exposure daily, to generate vitamin D for its protective effects against cancer, and its beneficial effects on general health. In midwinter 11 to 1 are the best times; at other times one's shadow should be shorter than one's height, but avoid the 2 hrs around SOLAR noon (not DaylightSavingTime) in summer.

My previous post about vitamin D may be viewed at: http://anxietyforum.net/forum/showthread.php?34912-I-can-t-breathe-or-relax&p=228476#post228476

VITAMIN D DOSE RECOMMENDATIONS (Dr. Mercola)
AGE DOSAGE
Below 5: 35 units per pound per day
Age 5 - 10: 2500 units
Adults: 5000 units
Pregnant Women: 5000

WARNING:
There is no way to know if the above recommendations are correct. The ONLY way to know is to test your blood. You might need 4-5 times the amount recommended above. Ideally your blood level of 25 OH D should be 60ng/ml.

--------------------------------------------------

To convert ng/ml to nmol/litre, multiply by 2.5

Therefore, 60 ng/ml (US system) = 150 nmol/litre (Australian system - more accurate).

Dr. John Cannell of http://vitaminDcouncil.org is of the opinion that maintaining good levels of vitamin D ( 100 nmol/litre to 175 nmol/litre ) minimises the risk of autism in the infant; see https://www.google.com.au/search?client=opera&q=vitaminDcouncil.org%3B+autism&sourceid=opera&ie=UTF-8&oe=UTF-8

[The Intolerable Kid]

Adoption could be an option. You could get a child to raise without the physical pain and hazards you're describing. Just a suggestion, good luck to you both.

[Kirk]

I agree with the possible adoption idea.