missmello
05-29-2013, 10:30 AM
So if any of you have read my posts you know I've been all over the place with my symptoms.
Well this time around I'm obsessing over the color in my fingers ad constantly checking my pulse.
My mom also has anxiety, and I've been talking to her about what's been bothering me. She called me today and said "Hey this lady I work with said her hands get cold all the time and change colors, and another lady told her it's probably raynauds phenomenon, and that its normal" So she encouraged me to look it up so that it would ease my mind. WRONG!
Raynaud's is associated with Scleroderma (an extremely scary disease, do not google it lol), and a few years ago my stomach doctor did an upper endoscopy and said there was "suspicion of scleroderma". I was then sent to another doctor who specializes in those kinds of diseases, and he did a blood test to look for certain antibodies associated with scleroderma. I never got results back, so assumed everything was fine, this was 2009 i think. Well in March I went to the medical walk-in and he saw in my records i was tested for it and said he could look up my results. They were NEGATIVE! Thank God! It did give me some relief, but he said they were also sent out for additional testing and those results are nowhere to be found. The doctor said if the initial results are negative then there's really nothing to worry about.
My first stomach doctor from 2009 suggested it, but my stomach doctor I went to see 2 months ago even took biopsies and said everything looked normal. I'm not sure what he tested for, but whatever it was, it was normal.
But how can i not worry!! Scleroderma can also affect the lungs, and I had xrays done in March where they found "calcified nodules" on one of my lungs. They said it looked benign, didn't seem concerned at all.. and they told me that a few years earlier it was also present on xrays, but there have been no changes. I don't smoke or anything so I don't know what could have caused it.
I wish my mother had never called me!!! I'm so upset, I wish I had never googled it because now I'm freaking out with worry.
Should I be going to the doctor to get tested for it again?? I don't know what to do with myself!
Well this time around I'm obsessing over the color in my fingers ad constantly checking my pulse.
My mom also has anxiety, and I've been talking to her about what's been bothering me. She called me today and said "Hey this lady I work with said her hands get cold all the time and change colors, and another lady told her it's probably raynauds phenomenon, and that its normal" So she encouraged me to look it up so that it would ease my mind. WRONG!
Raynaud's is associated with Scleroderma (an extremely scary disease, do not google it lol), and a few years ago my stomach doctor did an upper endoscopy and said there was "suspicion of scleroderma". I was then sent to another doctor who specializes in those kinds of diseases, and he did a blood test to look for certain antibodies associated with scleroderma. I never got results back, so assumed everything was fine, this was 2009 i think. Well in March I went to the medical walk-in and he saw in my records i was tested for it and said he could look up my results. They were NEGATIVE! Thank God! It did give me some relief, but he said they were also sent out for additional testing and those results are nowhere to be found. The doctor said if the initial results are negative then there's really nothing to worry about.
My first stomach doctor from 2009 suggested it, but my stomach doctor I went to see 2 months ago even took biopsies and said everything looked normal. I'm not sure what he tested for, but whatever it was, it was normal.
But how can i not worry!! Scleroderma can also affect the lungs, and I had xrays done in March where they found "calcified nodules" on one of my lungs. They said it looked benign, didn't seem concerned at all.. and they told me that a few years earlier it was also present on xrays, but there have been no changes. I don't smoke or anything so I don't know what could have caused it.
I wish my mother had never called me!!! I'm so upset, I wish I had never googled it because now I'm freaking out with worry.
Should I be going to the doctor to get tested for it again?? I don't know what to do with myself!